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In 2017, during a routine exam, our friend was diagnosed with polycythemia vera, a myeloproliferative neoplasm of blood-producing cells in the bone marrow that results in the overproduction of all types of blood cells.
Existing treatments do not cure polycythemia vera, but they can control it and decrease the likelihood of complications, such as blood clots. The goal of treatment is to decrease the number of red blood cells.
Bone marrow transplantation is the only cure option for polycythemia vera, but it is recommended only when polycythemia vera is complicated by myelofibrosis and bone marrow failure and depends on a compatible donor.
Because it is a rare disease, there are few drug options for the treatment of the disease.
Currently, the best option is Besremi, designated as an orphan drug (a drug used in rare diseases) developed on December 9, 2011.
However, treatment with the drug Besremi, in addition to having a very high cost, has only been released in Europe since 2019, Israel and the USA since 2021.
As this medication has not yet been approved by the National Health Agency (ANS) in Brazil, your only option is to carry out the treatment in a country where the medication is already approved.
Due to being refractory to the treatments available here in Brazil and the medical recommendation to start treatment with Besremi as soon as possible, we created this kitty to help our friend with travel and treatment expenses.
We will be forever grateful to anyone who can contribute!
Campanha Flexível
Destaque
1º Kick
R$ 100,00
Maior Kick
R$ 500,00
+ Recente
R$ 100,00
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